Anyways, so here is what's up with Kayden. Since last week he gained a pound and some ounces WOO!! That's great because he was losing which was BAD. So I'm so glad he gained and is now back to 31 lbs. Hopefully he will maintain around this weight. We still haven't heard anything from UVA or Boston & it's killing me..the waiting. His cardiologist sent 4 echos & his last week office note to them both. He has been feeling ok for a few days. Today he was a little off but still tried to keep smiling as much as he could. He tries so hard to feel good, even when he feels bad. I can't get enough of him though. I always find myself touching his feet or hands or face. I always hug him & kiss him. I always tell him how much I love him, & our new thing is muscles haha we do the 'flexing' thing & say 'look my muscle' 'me strong' LOL. He is so adorable <3 I love that little boy if hurts <3. He gives me the strength to get through my days. When I don't want to get out of bed I know I have to because Kayden needs his meds in the morning. Kayden needs to eat a good breakfast so he can grow to be a big strong boy.
Please tonight say a prayer for all of my CHD family <3 The CHD warriors & Angels <3
Go check out my website I'm working on www.helpheallittlehearts.weebly.com
Here is a gorgeous picture I want to share. One of my friends took it & it's like the Angels are looking down at us. You can see 2 baby faces in it. One where the sun is shining through & the other at the blue towards the top.