10 days baby boy

It's been 10 days since Kayden became an Angel <3 I miss him so much it hurts. I wish I could hear him yell for me or at me. I wish I could just talk to him & him talk back. Because yes, I do talk to him EVERY day & I still tell him every night, goodnight & I love him..So call me crazy, that's okay because after all I've been through I think it'll be okay if I am crazy now. It all still seems so unreal. I expect him to yell for me to get him out of bed, or even see him walk through the hall to the living room & stop at the door for me to come pick him up. I've been to the cemetery every day since we laid him to rest Monday July 18. Even if it's only a second to be sure no one has messed with his flowers. They'll probably be getting his flowers from his service tomorrow, they are all ugly and dead from the heat. So we got new ones from Wal-Mart & 2 Spongebob balloons <3 I just know he would love them! All I keep thinking of is, he isn't hurting anymore but some days that doesn't help. I also have to keep believing and reminding myself, if it wasn't his time to go, God wouldn't have taken him. If God didn't want Kayden to be an Angel that early morning, he would have helped that big ole heart beat some more. That is one thing that has gotten me through all of this is my faith, I handed everything over to God & I knew it would be okay. He took care of Kayden, he took all of his pain away because he knew it would never be over. Even after transplant he would have had to still go back every year to be sure his body wasn't rejecting it. So it would NEVER be over even after transplant. I believe we are all here for a purpose, I also believe as soon as we are born God has our 'expiration' date written down. I don't know what Kayden's purpose was unless it was to make me see how strong I am, because he sure did & he made everyone around him strong. He showed us the true meaning of life. & I do believe when it's my time to go I'll see that beautiful smile again. And as bad as it may sound, that gives me something to look forward to. I love you my sweet Angel <3 Watch over all of us, we miss you to the moon & back plus more <3 xoxo

Kayden James

I miss you sweet boy <3 I just wish I could see your sweet face once more, that smile that brightened up my day. I miss hearing your voice every day & night. I miss the feel of your touch when you'd hug me, I miss giving you hugs altogether, I know you hated them sometimes but I would still squeeze you tight and this is the reason why...because I didn't know how much longer I would have you with me. I am just so thankful I had you for 3 years than not at all....You touch my life baby boy & you made me stronger. Just guide me through this sweet heart <3 I miss you Kayden James more and more everyday if that's even possible. You are my life Kayden <3

I miss you more than words can say..

My heart is broken...It's almost been a week since Kayden's been gone. Everyday continues to get harder. I miss him more than anything in this world. The pain I feel is just explainable. He was my life for so long & all of a sudden he was gone from me in a matter of like 10 minutes. How is that? I know I can't ask myself why or say I wish this was different, because I KNOW in my heart and in my head that it will never change a thing. I know Kayden is gone & isn't coming back. I know I can never hold him again. I can talk to him but I can't ever hear him talk back to me. The hardest time of the day is bedtime I think. Kayden had a special thing every night. He'd always take his medicines, then I'd ask him if he needed more drink or wanted chips or anything to take to bed. Then we'd sing his moon song; 'I see the moon & the moon sees me, the moon sees somebody I want to see. So God bless the moon & God bless me, & God bless the somebody I want to see'. Then we would whisper 'night night, love you' I miss that little voice whispering to me. I just wish I could hear it...I will never be the same person EVER again. I can't even look at his meds in the evening, night because it makes me cry to see his name. I miss him so much. Kayden knows I love him & he knows I would have done anything for him. God knows it as well. I just wish I had longer with him. I've been to the cemetery everyday to see him & will continue that for awhile....I know eventually there will come a time I can't go everyday because I've still got 3 other children who need me. I know & Kayden knows I have to take care of them as well. I sometimes feel like people look at me weird because I don't cry all the time...I KNOW I can't sit around and cry all day everyday..of course I can make myself, but I also ask myself, would Kayden want that? And my answer is no he would not. I also know that Kayden will ALWAYS be with me any and everywhere I go. Because no one can ever take my memories from me, he will always be in my heart and in my mind. And even at night if I think really hard and concentrate I can heart that sweet little precious voice telling me 'night night, love you'. My heart just aches, my arms ache to hold him as well. My sweet boy is flying high with the other little Angels tonight and I hope he'll soon visit me in my dreams <3 or even come kiss me on the cheek one night <3 I love you Kayden James <3 12.21.07-7.14.11

Broken & I'm never gunna heal..

Sadly I have to say my sweet little baby Kayden James lost his life in the early hours of Thursday morning. He fought a tough battle with a CHD. He passed away at the young age of 3 1/2.  For those who knew Kayden they knew how much he enjoyed his self! He always wanted to see his own pictures lol he loved his sister & his brothers. Right now I'm broken my heart is shattered and if I go crazy I guess that'll be okay as well..I never wanted to see this day and I still wish i could wake up from this terrible nightmare...I do know though, that Kayden is no longer in pain, he is no longer hurting..I know I would ask him sometimes if anything hurt, I can see him just shake his head yes, and when I'd say where?, he would take his little finger and point to his heart =[...I miss him more than words could ever say. I do know I was blessed to have 3 years with my sweet Angel & I'm so thankful he had amazing doctors who looked out for him and who will remember him as well. Kayden impacted many many MANY lives and those lives will be changed always! There is nothing I wouldn't do for my son & I know he had a good life <3 I know now that I'll now not be afraid to pass either, because that is when I'll see my Kayden again <3 until then I'll see him in my dreams <3 I love you so much Kayden James ALWAYS AND FOREVER I WILL STAND BY YOU! I hope everyone remembers my sweet Angel <3 Fly High baby boy <3 12/21/07-7/14/11

Everything's gunna be alright...

This morning I was feeling a little rough when my mom told me Kayden's temp was 103 & that his kidney function was down from yesterday & his sodium was high so the ICU docs wanted to go down on the milrinone. As the day went on I couldn't help but keep my little man on my mind, as he always is anyways. But I just couldn't really get much done until about 5 lol! Anyways I talked to my mom throughout the day seeing how he was and his temp was normal & the kidney doctor just said to increase his fluids & cardiology said not to go down on the milrinone. & they never did drop him down on the list thankfully. I don't really know what happened this evening but I just felt a big relief like something was lifted off of me & I just feel everything will be okay soon. My Kayden is a little warrior he has fought since before he was even born & he has overcome so many obstacles & I know he's going to hang in there until he gets his Angel heart! And I know I won't stop fighting for him until MY heart stops beating! God has a plan for us all, & I know he has a very special plan for Kayden, I just don't think he would have put Kayden through so much in his last 3 years to just take him away from his home here on Earth. He has had his hand on Kayden for 3 1/2 years now & got him through his close calls like in Boston & like the other day when his heart rate got up to 215 because his potassium was high. He brought that little heart rate back on down and it has finally gotten into the 140s-150s. God is greater than ANY CHD & I know he will help Kayden beat this!! All I can do is ask you all to continue the prayers & keep him on your prayer lists at church, so God HEARS his name on a daily basis and he knows just how many people want Kayden to make it through this!! Prayers work miracles & Kayden is one of those miracles I believe in them because of him! He has proven doctors wrong & I am TRULY BLESSED to have this boy in my life!! Please continue to pray for little man while he fights his toughest battle for his life right now <3

No words..

I have no words for how I feel. Well actually yes I do I just can't explain it. I don't know what to do anymore..Ever since extubation and after the nap he took, Kayden has been moving uncontrollably, he will not talk and he doesn't recognize anyone. He doesn't respond to his name, he doesn't know what is going on at ALL!!! He improved a little where he actually focused for a little bit on tv these evening and this morning he wasn't doing that. But by the time they gave him meds to help him rest, he was back to moving around and actually like 'trying' to sit up but he is so uncontrollable that we are afraid he's going to fall out of the bed. They have no idea what it is. He had a CT scan last night and nothing showed up on that. They got some blood & are planning to do an MRI in the morning so they will have to reintubate him. I just don't know what is going on. They said they've seen this behavior when someone has a stroke. But the CT didn't show signs of a stroke so maybe the MRI will tell more...I just don't know what it could be. But the stroke scenario sounds a little more realistic than anything else they have said...I have prayed and prayed & prayed when I can't do it anymore. And I'm waiting for God to answer those prayers and for Kayden to be okay and for Kayden to get his new heart. And when things get bad after praying for them to get better how can I not be frustrated? God doesn't give us more than we can handle? Why is he testing me so much right now? I don't know what to do I've handed this all over to him but I can't let go myself I can not. I will not let go because I'm his mother and I will do whatever I can even if it is analyzing him and trying to rack my brain for answers..like I have been doing all day even if my theories sound stupid i still ask. I know how Kayden is and  I know to always expect the unexpected with him which I have told doctors over and OVER again.. I just don't know when they will start listening to me. They have said since day 1 that Kayden is a very unique case and they haven't seen anyone like him & I'm starting to believe them more and more now.
Please just continue to pray for Kayden and pray this gets resolved soon & he gets re activated on the transplant list <3

I've always been an impatient person...

This is so not good for me..I hate waiting. I always have and always will. It's the worst part of it right now..the waiting..the not knowing..I get told so often that they don't know how I do what I do with 3 other kids at home..I honestly don't have a choice. I mean I guess I do but I won't have it as a choice. My kids are my life now & if one is sick or hurting I will do what I can to make it better but also be sure the others are okay as well. I don't know how I do it. I kind of have that 'it comes natural' to me feeling. I guess because I've been doing it for 3 1/2 years now. Because when he was a baby I had to balance my time between seeing him in the nicu & Alexis at home. Then it was doctors or hospitals when he wasn't home. So I know Kayden needs me most right now but I also know my other kids need me as well.

I'm praying day and night that his special angel heart comes soon <3 I hope a family can find it in their hearts to give other children a second chance at life <3 This is so sad all of it is. I love kids and I would NEVER want anything to happen to anyone's child. And now here I am praying my little boy gets a heart and in order for that I know what has to happen...Does this make me horrible person? Or does is just make me a mom wanting their child to be okay? I keep going over that in my mind.