Strength.Courage.Hope: Everything's gunna be alright...

Tuesday, July 12, 2011

Everything's gunna be alright...

This morning I was feeling a little rough when my mom told me Kayden's temp was 103 & that his kidney function was down from yesterday & his sodium was high so the ICU docs wanted to go down on the milrinone. As the day went on I couldn't help but keep my little man on my mind, as he always is anyways. But I just couldn't really get much done until about 5 lol! Anyways I talked to my mom throughout the day seeing how he was and his temp was normal & the kidney doctor just said to increase his fluids & cardiology said not to go down on the milrinone. & they never did drop him down on the list thankfully. I don't really know what happened this evening but I just felt a big relief like something was lifted off of me & I just feel everything will be okay soon. My Kayden is a little warrior he has fought since before he was even born & he has overcome so many obstacles & I know he's going to hang in there until he gets his Angel heart! And I know I won't stop fighting for him until MY heart stops beating! God has a plan for us all, & I know he has a very special plan for Kayden, I just don't think he would have put Kayden through so much in his last 3 years to just take him away from his home here on Earth. He has had his hand on Kayden for 3 1/2 years now & got him through his close calls like in Boston & like the other day when his heart rate got up to 215 because his potassium was high. He brought that little heart rate back on down and it has finally gotten into the 140s-150s. God is greater than ANY CHD & I know he will help Kayden beat this!! All I can do is ask you all to continue the prayers & keep him on your prayer lists at church, so God HEARS his name on a daily basis and he knows just how many people want Kayden to make it through this!! Prayers work miracles & Kayden is one of those miracles I believe in them because of him! He has proven doctors wrong & I am TRULY BLESSED to have this boy in my life!! Please continue to pray for little man while he fights his toughest battle for his life right now <3

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About Me

My name is Misty. I'm 26 years old from Roanoke, VA. I am a single mom to my little ones. I've got 5 kids. Alexis, Kayden, Tavion & Isaiah. Kayden is my little Angel, he went to live with the Angels July 14, 2011 waiting on a heart transplant, he was 3.5 years old. Alexis is my oldest she is almost 9, Tavion is 5, Isaiah is 4, and Elijah is 4 months. I enjoy reading, watching movies, blogging, quiet nights(when possible), and long drives listening to music. I started blogging to tell people about Kayden's journey with a broken heart, now it's about life with him as an Angel & how I deal and you'll also get to know my other little ones. You can also visit Kayden's page at www.kaydenjames.weebly.com or on facebook at www.facebook.com/KaydenJamesCHDAngel

My Family

Little Miss Lexi

Alexis is my first child & my only girl. She was born on February 9, 2006. I found out I was pregnant with Lexi 2 months after I had a miscarriage. I was quite surprised that I was pregnant but I was excited along with scared and nervous. She is the best big sister anyone could ask for. She helps with her brothers & she helps me if I need her to..She is a very smart little girl as well, right now she is in preschool. I can't believe my baby girl is almost in Kindergarten. It's true that time doesn't stop for nothing.

Superman

Kayden took his first breath on December 21, 2007 and took his last breath on July 14, 2011. Kayden was born with a bilateral cleft lip and palate, dilated cardiomyopathy & a displaced tricuspid valve with tricuspid regurgitation. He had 6 surgeries in his 3 1/2 years. He had 3 to complete his cleft lip/palate, pyloric stenosis at a month old, a preauricular cyst removed & open heart surgery on March 17, 2011. He always had a smile on his face no matter how many challenges were thrown his way. I miss my child more than anything in this world. I love Kayden more than words can ever say. I am broken and will never be repaired, he was my life & my heart is shattered since he lost his battle with his CHD. I'll never stop telling his story because people need to be aware of what is possible & I would like to think that Kayden's life will save another child.

Crazy Tavy

My middle boy, Tavion James. Tavion was born on May 13, 2009 at 37 weeks. He was my biggest yet shortest baby born lol! He is a handful right now he is at the age he wants to get into everything. Although he is small still he holds his ground and has an attitude. He is starting to get into the terrible twos which is never fun but we will survive. He's an amazing little boy and always keep us smiling. Tavion has no health problems that we've noticed and hopefully he continues to stay that way.

Superman's Baby

Isaiah James was welcomed into the world on December 16, 2010 at 3:02 a.m. He weighed 7 lbs 11 oz. & was 20 1/2 inches!! He had a head full of beautiful black hair (just like his sister did). Kayden absolutely loved him and called him his baby. He's so full of energy, loves his brothers and his sister.
My Rainbow

Elijah was born on August 22, 2014, he was 7 lbs 14.8 oz. He's an absolute blessing. Elijah is my rainbow baby, I was so unsure about having more kids after I lost Kayden, but now I see Kayden picked this little fella to send me. I couldn't imagine my life without him. His smile brightens up my darkest day.