Finally we are almost to the end of our stay in Boston!! Hopefully the beginning of the week we'll be heading home!! But over the past few days Kayden's done pretty well!! Friday was the worst. I have to blame it on the nurse he had. She was so mean, I mean I get she needed to change his NG tube because it was irritating his nose and the side it was on was bleeding. But okay, Kayden had a cleft lip/palate so therefore you can see in his pictures that his nose isn't that big and this stupid girl was shoving this thing up in his other side and made it bleed then she was trying to clean the other side out and NOTHING came out and the whole time he is screaming, I let go of him and was hoping he would reach up and smack her. Then okay he hasn't ate solid food in over a week & was given how many different meds for the whole time? Okay dumbass if the first thing that goes in you is apple juice & a lot of it, then I bet your stools will be loose too! This stupid girl is like freaking out because his are loose so she's like oh yea this is definitely not looking good, I'm sending it off for a culture so he needs to be on precautions until we get it back, it only takes a couple hours. YEA So here it is SUNDAY NIGHT and NO RESULTS BACK BECAUSE THEY WON'T HAVE THEM UNTIL MONDAY SINCE THEY WERE RECEIVED AFTER 3PM FRIDAY!! SO THANKS TO THIS SUPID GIRL HE COULDN'T GO OUT OF HIS ROOM ALL WEEKEND!! And to add to it everytime she would come in Friday he'd rock back and forth, turn around to ignore her, and cry!! Not only that but Saturday he did the same thing. So needless to say I wasn't happy with her and could kick myself in the ass for not bitching her out!! Sorry if you get offended by the cussing but OMG really!! I still am mad about it!! But he had a really awesome nurse today and yesterday who let him walk some lmao!! She is awesome and Kayden actually didn't mind her too bad!!
Today he got the pacing wires out! YAY & he lost his last IV! He's ate a lot today so that's awesome!! Hopefully we'll be heading back to VA Tuesday or Wednesday!! I really don't know what else they have to do other than an echo which won't take long & get him to take his meds by mouth...which I think he'll do once we get home..I did get him to take 1 by mouth last night =]!! He's been talking so much today so that's been awesome!! I just can't explain the feeling I have when I hear him say love you, and I get so emotional just knowing a month ago I wasn't sure if I'd have him right now!! I've been blessed with a little Angel and I'll not take him or anything for granted!! I love him & my other kids with all my heart!! Have a good night <3