I have handed my son over to surgeons knowing they would stop his heart, and prayed that it would beat again. I have learned more than I ever thought I could. I have cried more than I ever thought possible. I have celebrated victories and milestones that others never have to. I have walked a road I never knew existed. I will walk this road forever. I am a mommy to a CHD Angel ♥ iLy Kayden James

Friday, March 18, 2011

Happy Re Birthday Kayden!!!

Just some updates =]

Tuesday, March 15, 2011
Kayden had his cath, MRI & echo done. He did well with the echo, but during the MRI he gave everyone a scare. His heart rate dropped in the 40s and his blood pressure got really low. They are pretty sure this happened during the breath holds. So since he did that they just done a quick cath. The cath results were not super bad. Of course his pressures in his right atrium were just terrible. His oxygen amount in his blood was good though so that is def great..It was bad when he had the cath done at UVA so that made me somewhat happier that one thing was better! So they did decide to do the cone repair!

Wednesday, March 16, 2011
Wednesday was a good day. By the end of Tuesday night he was pretty much back to his self even though he scared everyone during the MRI lol!! So we just were preparing for his big day Thursday =[

Thursday, March 17, 2011
SO Thursday was definitely the day I have been so looking forward to but yet so dreading!! That morning me & my mom got up and got to the hospital early since Philip stayed Wednesday night. They came and took him downstairs at about 7:15. My mom told him she'd see him later and gave him his kisses when we got off the elevator. Anyways, we took him back to the room where they go before the OR. That is when th moment I was dreading came. It was time to give my baby boy kisses and hand him over to the doctors!! So I did & as soon as I left the room I lost it. I couldn't help but cry for the next hour & a half..Well actually I cried some off and on all day as I got updates. I got updated when they started, when he was put on the bypass machine & when he came off of it. I think the hardest part was when they said he was on the bypass. I guess because I knew them his heart was stopped. I was praying hard during this whole thing that he would be strong and fight. I swear Thursday went by so SLOW!! But once the surgeon came out I was freaking out, my stomach dropped. But once he said he was stable and he done great I got tears in my eyes because I knew he was going to be okay!! Dr. Del Nido (surgeon) said he decided to do the glenn also so he did that, he also said that his right atrium was massively huge which we knew that. He said that Kayden had a lot of scar tissue which he said he wasn't sure where it came from but he thinks it was from where his heart muscle had gotten so big & stretched that it just turned to scar tissue. So he removed most of it, he took out some of the right atrium so it's not as big & he said the valve was repaired and it's very little leaking which is amazing!! He also said the right side of his heart was compressing the left side, so now hopefully the left side will get somewhat better over time. He was really please with Kayden & how he done though. So that obviously made me feel amazing!! It was about 3:30-3:45 when I got to see him Thursday afternoon. I got tears again once I saw him. I knew he was going to be fine. He was just sleeping it looked like, even though it's not willingly lol! I'm so proud of my son & I'm so thankful to have the people I do supporting me!! I also thank everyone who has prayed for him!! HAPPY RE BIRTHDAY KAYDEN JAMES!!

Friday, March 18, 2011
Today hasn't really changed. He's done good for the most part. His blood pressure has kept getting high & low but it's normal they say & they also think it's because of the line in his neck..The doctors & surgeon are extremely happy with Kayden & pleased with how well he is doing and has handled the surgery!! He's definitely doing better than they expected. They were expecting him to give them more trouble! He did lose one IV today & he got his LA line taken out. Not much new happened today he's still sedated & paralyzed. But tomorrow they are thinking of taking the paralysis away and his body taking control some. Hopefully he'll be awake Sunday!! 

1 comment:

  1. That's All Awesome News..I'm Glad He Did So Well..& That He Doesn't Have 2 Have Another Surgery AnyTime Soon!..<3 All Of You