I have handed my son over to surgeons knowing they would stop his heart, and prayed that it would beat again. I have learned more than I ever thought I could. I have cried more than I ever thought possible. I have celebrated victories and milestones that others never have to. I have walked a road I never knew existed. I will walk this road forever. I am a mommy to a CHD Angel ♥ iLy Kayden James

Tuesday, March 29, 2011

I've been touched by an Angel with a mended little heart

Okay, so Finally...I can call my son a survivor! And at the same time he is still a CHD Warrior. He will still fight his battle the rest of his life since he has dilated cardiomyopathy..but his biggest problem has been fixed. He will still take his meds on a daily basis probably for the rest of his life..and if not then still for many many more years!! He is one of the strongest people I know. Kayden is stronger than ANY grown man I know!! My life has changed forever in a way that many people will never even know! I know we say that when you have a child it changes your life. Which I have to agree it absolutely does. But I never thought back in April 2007 when I found out I was pregnant with my second child that my life would soon be changed in a very different way. In a way that I would then fear whether or not my child would live or not!! I never even thought of my child being born with anything wrong. No that just wasn't possible I was still only 19 so of course I was like well my first kid is fine so I know this one will be too!! My life changed entirely once I found out Kayden had a heart defect & a cleft lip/palate!! I know I've still done some things wrong in the past 3 years. But I can also honestly say that in the past year I have done a lot of finding myself & I have felt myself changing my ways of everything! I owe all of it to my 4 kids. But most of it lately to Kayden..Kayden has taught me to never take anything for granted! He has showed me to never judge people, Kayden has taught me to LOVE unconditionally forever and always!! I've opened up my heart to God which i know can sound a little corny..But I've never been a religious person or I've never actually prayed everyday, or sometimes I'd go months without a prayer. But Since Kayden's heart got worse, I prayed every single night & day that I could have just one more day with my baby boy, I've prayed for him to keep his hand on Kayden & through the troubles he faces. During his surgery I prayed hard that he would keep his hand on Kayden's heart & to let it start again and once the surgery was over. I looked up at the sky out of the huge window and I just thanked him for watching over my child. And suddenly the day seemed so much brighter. And everyday since I've prayed night & day! And my days seem so much brighter. I think I look at everything differently now. I guess I don't have to but in a way yes, I very much have to!! I hope that these doctors have learned from Kayden and his CHD since it is different from Ebstein's but yet very similar..Because times are changing & chances are there will be a baby born with something like Kayden or even exactly like Kayden! I know that I want to make a difference in some families lives who have been touched with a beautiful Angel!! I hope that Kayden's story helps someone else as many families have done for me!! They gave me hope when I was running low on everything. I have had a very amazing support system through friends, family & God and I appreciate them all and I will forever be grateful that I have such wonderful people in my life!!

With that all being said, I'm VERY happy to say Kayden is being released tomorrow March 30, 2011 to go home!! We will be heading back to Virginia early Thursday morning!!


1 comment:

  1. Awwww..I'm Glad You Get To Go Home ThursDay!..He Sure Is A Miracle Child & An Amazing Little Boy! <3 You All