I have handed my son over to surgeons knowing they would stop his heart, and prayed that it would beat again. I have learned more than I ever thought I could. I have cried more than I ever thought possible. I have celebrated victories and milestones that others never have to. I have walked a road I never knew existed. I will walk this road forever. I am a mommy to a CHD Angel ♥ iLy Kayden James

Thursday, March 24, 2011

Little baby steps & BIG Giant steps

Wow so much has happened since my last update!! Kayden has done SO well! He is finally awake and he's off the ventilator as of March 22 =]!! He's done so great, I am just amazed. He got out of the CICU today so he is now on 8 East of the Cardiac floor! He's been up walking today and a couple times yesterday! They've started him on a new medicine called Amiodarone & they've started a few of his meds back. Now our goals are to eat, drink, takes his meds orally instead of in his NG tube & also get his strength up. Then we should be good to go home!! So you know we are VERY excited. Moving onto the floor is awesome because our next stop is HOME with the rest of our family <3!! It's been so hard being away from Isaiah and Tavion. I've missed them so much, but at the same time I know it's for the best. Because I would never be able to live a day without my Kayden or any of my children! I'm so thankful for Kayden's doctors who referred him to the doctors here! I'm so thankful that God has blessed Dr. Del Nido with the gift of mending little broken hearts. Because to him it's a job, but he has made a HUGE difference in my life and in my families life! He has saved my little boy, I'm proud to say now that my SON is a heart surgery survivor, he is one strong little Warrior who will continue to fight his battle with heart disease. But at least now thanks to the wonderful hands of this GREAT man he will not need any future surgeries any time soon! Again I want to thank everyone who has prayed for him & to everyone who has put up with me & my emotions through this journey!! It's been such a rough time and we've hit so many bumps, I've broken and pulled myself back together again more than once, but I would have NEVER been able to do it without my son, my family, my God, and my WONDERFUL friends!!
He was tired of us telling him 'Not much longer Kayden, you're doing so good!' LOL
After Getting the breathing tube out!
A little smile <3
His new Dinosaur pillow pet <3 it looks like it's eating him lol


  1. Awwww You Made Me Cry....He Sure Is A Trooper!

  2. Praying you all are home soon. He is AMAZING and has done so well. I am so impressed!